New MOOC on health data ethics in rare disease research

A new Massive Open Online Course (MOOC) on Health Data Ethics & Regulatory Frameworks in Rare Disease Research has been launched today! Developed as part of the European Joint Programme on Rare Diseases, in collaboration with the Rare Diseases Foundation, this course will allow you to meet clinicians, researchers, patient advocacy groups, as well as people working on European infrastructures and regulators.

Expert Educators and Guidance

You will be guided by several experts, including our FGB researchers Viviana Giannuzzi and Annalisa Landi. It is a 4-week, free online course dedicated to undergraduates, doctoral students, health professionals, researchers and enthusiasts eager to understand the ethics and regulatory frameworks related to health data research and rare diseases.

Registration and Schedule

From May 6th to June 28th, join the course for an enriching learning experience with expert educators on hand to address your queries. Don't miss this opportunity: find out more and register here.

Key Course Information

• Course Type: Massive Open Online Course (MOOC)
• Duration: 4-week, free online course
• Timeline: From May 6th to June 28th
• Target Audience: Undergraduates, doctoral students, health professionals, researchers and enthusiasts
• Main Collaborators: European Joint Programme on Rare Diseases and the Rare Diseases Foundation